Looking for Black Young Adults and Parents–Workgroup on Culturally Sensitive Health Care

We are looking for Black young adults with special health needs and parents for a workgroup on culturally sensitive health care.

What should culturally sensitive health care look like for Black young adults with special health needs as they transition from pediatric to adult health care?

We are looking for your insights and ideas from your experience receiving health services as you transition from pediatric to adult health care. Your ideas will be used to help create education resources for health care providers on culturally sensitive health care practices, and tools for youth and families to support successful transition to adult health care. This project is through the Oregon Center for Children and Youth with Special Healthcare Needs at OHSU (OCCYSHN).

WHO

  • We are looking for 2 Black young adults (16 to 25) with special health care needs or complex medical needs who have experienced (or are experiencing) transition from pediatric to adult health care.
  • We are looking for 3 Black parents of young adults with special health care needs who are working on (or have gone through) transition to adult health care.

WHAT

  • Participate in a workgroup (3 sessions) with other young adults and parents- focusing on culturally sensitive health care during transition to adult care.
  • The first 90-minute workgroup meeting will happen around the end of March (date TBD) in the Portland area.
  • Participate in two workgroup meetings on April 22-23 (sessions 2 and 3; dinner and meeting on Saturday evening; breakfast and meeting on Sunday morning).

Interested?

Contact Chuck Smith by March 24th – 503-502-2965 or csmith33141@gmail.com

The Details

  • Participants will receive a $250 stipend for their participation (half at the first session, and the remainder during the second gathering).
  • The first workgroup session will be scheduled for late March/early April based on the schedule/availability of the participants.
  • The second and third workgroup sessions will be part of an overnight gathering on April 22-23 at the Monarch Hotel (near the Clackamas Mall). The workgroup participants will be from the Black and Latino communities. Saturday will include dinner (@ 5:00) and a workgroup session. Sunday will include breakfast and a workgroup session/wrap up. We will end at 11:00 AM.
  • Each participant will have a reserved hotel room for April 22nd to accommodate them and any family members or caregivers (rooms can accommodate up to 4 people). Dinner and breakfast will be provided for participants and accompanying family members/caregivers.