“Our mission is to improve the quality of life of those suffering with sickle cell disorders and to inform and educate the general population. Our goal is to promote awareness of the genetic causes and health effects of sickle cell anemia and related conditions; to promote improved access to care through raising the number of sickle cell educated clinicians; to remove the stigma that sickle cell clients are drug seekers which impede the ability to provide sensitive and quality care.”
–Pastor Marcia L. Taylor, Director,
Sickle Cell Anemia Foundation of Oregon
Our goal is to address challenges of sickle cell sufferers, such as access to care, socio-economical support services, mental health, isolation, peer advocacy and navigation services and holistic follow up services
Our objective is to link and/or provide individuals with resources, tools and support and to keep them informed on clinical trials, telehealth, new treatments made available to them and to foster greater sensitivity for emergent services, as well as help implement passport to services and promote holistic counseling and education services.