SCAFO Christmas Party & Toy Giveaway 2023
Click to Register: https://tinyurl.com/SCAFOHOLIDAY23
Download our PDF file here.
Sickle Cell Warriors: It’s Turkey Time!
Register for your Free Turkey Here: https://tinyurl.com/SCAFOTURKEY23
In observance of Juneteenth, 2023 there will be two virtual sessions for you to attend!
Please click here to register: https://tinyurl.com/J23Reg
Living with Sickle CellClick here to download the flyer.
Click here to download this PDF file.
Join us on Zoom – https://zoom.us/j/7161992869
Please click the registration link to sign up for group.
Contact us if you have questions or if we can be of help in other ways — 503-249-1366
Your facilitators are Chuck Smith (charles@sicklecelloregon.org) and Pastor Marcia Taylor (marcia@sicklecelloregon.org).
Pastor Marcia L. Taylor, Executive Director of The Sickle Cell Anemia Foundation of Oregon, has been chosen by the Allen Temple C.M.E Church to receive the Unsung Heroine Award in recognition of her service for Children and Youth Advocacy!
Pastor Taylor will receive the award during a ceremony and fundraiser luncheon to take place on Saturday April 29, 2023 at 1:30PM at the Allen Temple C.M.E Church, 4236 NE 8th Avenue in Portland, Oregon 97211.
This fundraiser event will help with the continued cost of rebuilding the church after the 2015 fire.
Tickets to the luncheon are $25 per adult, and $12 for children 11 and under.
Tickets should be purchased in advance by either cash app ($Allentemplecme) or by check made out to Allen Temple CME Church with the information: “Unsung Hero” in the memo section. Please contact Rev. Rhonda Smith at rhondiva3@gmail.com or Regina Green at rgreen6025@gmail.com for ticket information.
The Unsung Hero/Heroine Award acknowledges individuals and organizations helping the under-served communities of Portland.
We are looking for Black young adults with special health needs and parents for a workgroup on culturally sensitive health care.
What should culturally sensitive health care look like for Black young adults with special health needs as they transition from pediatric to adult health care?
We are looking for your insights and ideas from your experience receiving health services as you transition from pediatric to adult health care. Your ideas will be used to help create education resources for health care providers on culturally sensitive health care practices, and tools for youth and families to support successful transition to adult health care. This project is through the Oregon Center for Children and Youth with Special Healthcare Needs at OHSU (OCCYSHN).
WHO
WHAT
Interested?
Contact Chuck Smith by March 24th – 503-502-2965 or csmith33141@gmail.com
The Details
Hello community partners and friends!
We hope this message finds you in good health and spirits.
We are reaching out to community partners and friends to get your support in helping families and individuals in our community who are affected by sickle cell disease. We are writing to request your support in advocating for HB2927- To establish a system of support for individuals impacted by Sickle Cell Disease. Rep. Travis Nelson is the primary sponsor of this bill, and the team at SCAFO has been working with him in crafting this initiative. The House Committee on Behavioral Health and Health Care is holding a hearing on this bill on Wednesday March 1st. Having the committee hear the voices of our community will go a long way in moving this bill forward.
This bill would establish a Statewide Steering Committee on Sickle Cell Disease. Enacting this measure would direct the Oregon Health Authority to devote the attention and resources needed towards understanding and responding to the physical, social, and emotional needs of people affected with sickle cell disease and their families. We have provided a one-page summary for your reference and use. We have also included the full text of the bill for your edification.
Sickle Cell Disease (SCD) is an inherited blood disorder that affects over 100,000 Americans — and millions worldwide. It is one of the most prevalent genetic blood disorders in our country. According to the CDC, approximately 1% of children with SDC will die within the first 3 years of life — often from stroke and without warning. Some two million Americans are carriers of the sickle cell gene. Yet, it has been underfunded and under researched for decades.
The Sickle Cell Anemia Foundation of Oregon is the only statewide non-profit direct service organization focused on the needs of people affected by Sickle Cell Disease for the past 40 years. We serve clients from WA, ID and AK as well, when the need arises. We have been dedicated to educating vulnerable populations, serving people in need, and encouraging testing for the presence of this painful and life-threatening, but treatable disease. We are currently charged with providing support services to families of newborns affected with SCD as part of the newborn screening efforts funded by HRSA.
Here are four ways you can put your support into action:
How to submit written testimony
HB 2927- Sickle Cell Committee 2023 – Legislative Text
One Page Promo to SUPPORT HB 2927- Sickle Cell Committee 2023
Please join us THURSDAY night ONLINE for our monthly support group meeting for Sickle Cell Warriors and their families.
Share your stories. Meet others.
Support others and receive support and resources!
Thursday, February 16th
7:00 – 8:00 PM
Join us on Zoom – https://zoom.us/j/7161992869
All people with sickle cell disease and their family members are welcome to join us in a space of caring, support, and uplift. Each month you will:
# have a chance to speak your truth
# receive support from others who understand and care
# receive inspiration from others have a chance to support others
# build your network of friends and supporters
# receive information to help you live a fuller life
We meet on the 3rd Thursday of the month at 7:00 PM (PST).
Please click the registration link to sign up for group — we can send you group reminders, updates, and information.
Join us on ZOOM on the 3rd Thursday of every month at:
https://zoom.us/j/7161992869
Contact us if you have questions or if we can be of help in other ways — 503-249-1366