SCAFO-Billy Webb Elks Lodge Black Community Health Partnership

The Sickle Cell Anemia Foundation of Oregon (SCAFO) and the Billy Webb Elks Lodge join together in common cause for the benefit of the African American community in the Portland area. Our shared missions of building the quality of life of community members (mind, body, and soul) through exchanging resources, knowledge, and shared cultural history form the foundation for our collective efforts to promote health, raise awareness about sickle cell disease, and attend the health needs of our community.

Our Shared Goals:

  • Promoting the health of our community
  • Raising awareness about Sickle Cell Disease
  • Extending outreach to people who have unmet health needs

The leaders of each organization have begun working on action steps that you will be able to be a part of as we work toward these three goals.

Join us on our first joint venture — a drawing on November 14th. Tickets are just $5 each and the winner will win a freezer filled with meat valued at $100 and fresh veggies from Black Futures Farm! Proceeds will go toward our shared goals.

Purchase tickets here: https://www.eventbrite.com/e/benefit-drawing-for-black-community-health-partnership-scafo-tickets-120568532727

Announcement will be on Saturday, November 14th at noon.

We hope that you will be inspired to action and encouraged to join in on upcoming opportunities to demonstrate your love for our families and neighbors and our shared commitment to optimal health- mind, body, and spirit. Visit us on line to learn more.

https://sicklecelloregon.org/
https://www.facebook.com/BillyWebbElksLodge/
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SCAFO Mission Statement
Our mission is to improve the quality of life of those suffering with sickle cell disorders and to inform and educate the general population. Our goal is to promote awareness of the genetic causes and health effects of sickle cell anemia and related conditions; to promote improved access to care through raising the number of sickle cell educated clinicians; and to remove the stigma that sickle cell clients are drug seekers which impede the ability to provide sensitive and quality care.
Billy Webb Elks Lodge Mission Statement
The mission of the Billy Webb Elks Lodge is to enrich, uplift and build Portland’s African American Community through culturally relevant activities that fortify the mind, body and soul.
We work to achieve this mission by promoting and providing activities that focus on charity, justice, and equity. We believe that building community will ensure brotherly and sisterly love that inculcates fidelity through the exchange of resources, knowledge and shared community history to create and replenish a culture of well-being for Lodge members and Portland’s African American community.
Sickle Cell Anemia Foundation of Oregon, Inc.
Participate in a Sickle Cell Anemia Patient Study

Would you like to share your experiences of living with Sickle Cell Disease and earn a $20 electronic gift-card for your time?

If you are 16-26 years old with Sickle Cell Disease, and live in the United States, you may be eligible to participate in this study that involves a 15-minute survey. The purpose of this survey is for researchers to understand and learn about your experiences with SCD and what barriers may exist during the transition from a pediatric/ children’s healthcare setting to an adult healthcare setting.

If you are interested in participating then email us at info@sicklecelloregon for a link.

Register for Portland’s 2020 Sickle Cell Anemia WALKATHON

SATURDAY, SEPTEMBER 26, 2020
VIRTUAL WALKATHON

 

This year the Walk-a-Thon is VIRTUAL!

WALK ON YOUR OWN TIME and WHEREVER YOU WANT!
Send us a picture of your VIRTUAL WALKATHON and we’ll post it on our facebook and website.

$20 donation fee to register
Click HERE to register…
or CALL 503 249-1366

 

Download the flyer here: Virtual-Walkathon-Flyer-2020

 

WALK FOR LIFE! BE THE DIFFERENCE WHILE HAVING FUN!

Sponsored by The Sickle Cell Anemia Foundation
4566 NE 87th, Portland, OR 97220

Blood Shortage: The American Red Cross Needs You!

American Red Cross.

The American Red Cross Needs You!

The American Red Cross Is Experiencing A Serious Blood Shortage
Thousands Of Blood Drives Are Cancelled Nationwide Due To Covid-19 Pandemic! Sickle Cell Clients Often Receive Blood To Save Their Lives.

Call 503 284 1234 To Make Your Appointment Now!

Use Healthy Practices to Protect Yourself: Cover your nose and mouth with a tissue when coughing or sneezing. Throw the tissue away after use. If a tissue isn’t available, cough or… Clean and disinfect frequently touched surfaces daily. (This includes tables, doorknobs, light switches, handles,etc.) Wash your hands often with soap and water for at least 20 seconds, especially after you have been in a public place, or after blowing your nose, coughing, or sneezing. Avoid close contact with people who are sick, even inside your home.

Click here to download our flyer.

Shine-the-Light-on-Sickle-Cell-Flyer
Shine The Light on Sickle Cell 2020

A NATIONAL AWARENESS CAMPAIGN TO CELEBRATE WORLD SICKLE CELL AWARENESS DAY 19 JUNE 2020

We invite you to join with friends, family, neighbors and others in your community, as people around the nation and across the globe, host and hold local gatherings to shine the light on sickle cell disease.

Together, we must and will find a universal cure for sickle cell disease!

Download the flyer here.

Sickle Cell Patients May Qualify for $4000 Credit

Hello Sickle Cell warriors! There is good news in spite of this pandemic and frustrating time! You may qualify for a $4,000 grant per year. (Note: participants will not receive a check, but a credit for those medications and/or co pays yearly.) Eligibility criteria: be under treatment for sickle cell, have medicare health insurance that covers your qualifying medication or product and your medication or product listed on PAN’s list of covered medications, your income must below 500% of the federal poverty level and you must reside and receive treatment in the United States or US territories. If you think you qualify, please contact me at marcia@sicklecelloregon.org.

Those of you who do not qualify, but need food or help with other expenses, please contact me at the email above or info@sicklecelloregon.org.

Staff are calling clients to follow-up on your well-being. If you have moved, changed email addresses or changed phone numbers since you enrolled, please let us know. Remember to get plenty of rest and fluids, eat right and wash your hands frequently and wipe down things frequently touched. Watch movies that make you laugh!

May god continue to bless each of you and keep you well.

Pastor Taylor

Sickle Cell Anemia Foundation of Oregon COVID-19 Emergency Fundraiser

Sickle Cell Anemia Foundation of Oregon COVID-19 Emergency Fundraiser

We are in uncharted waters with COVID-19, which is creating growing challenges for our sickle cell community. This is a time when our advocacy is most needed,” Sickle cell disease (SCD) is an inherited blood disorder. It alters the flow of hemoglobin – the red blood cell molecule that delivers life-giving oxygen to the body’s organs and tissues – which can cause life-threatening multi-organ failure, debilitating pain, and even death.

Our non-profit organization is on the frontline of support, including assisting with food security, housing, childcare and healthcare, internet installation and help with tele health services. To continue our commitment to our clients, funds are needed for operating support we need your support.

Those looking to help can donate to the COVID-19 Emergency Fund to support The Sickle Cell Anemia Foundation of Oregon by cell to 503 249-1366 or PayPal or by mailing a check or money order to: P.O. Box 11124, Portland, OR 97211.

To the Parents of Children with Special Health Needs!

Parents of Children with Special Health Needs: Focus Groups in Oregon

The Sickle Cell Anemia Foundation of Oregon (SCAFO) and the Oregon Center for Children and Youth with Special Health Needs (OCCYSHN) are talking with families who have Black children with special health care needs. We want to learn about their experiences working with health care providers to care for their child. We will use this information to advocate for services that meet the needs of Black children and their families.

Children with special health care needs can have any kind of health condition that affects their body, development, emotions, or mind. Their condition lasts for at least a year, and they need care or other services more than other children typically would. We specifically want to talk with parents or guardians of children with special health care needs who are younger than 26 years old.

SCAFO will hold confidential group discussions with parents who agree to participate. The
discussions will last two hours, and refreshments will be provided. Families will be provided with $50, and childcare and transportation if needed.

If you are interested in learning more about this project, please call or email:

Pastor Marcia Taylor (503) 249-1366, marcia@sicklecelloregon.org) or
Charles Smith (503) 502-2965; charles@sicklecelloregon.org).

DATE LOCATION TIME
Wed 12/18/19 National Association of Minority Contractors – 2808 NE MLK Blvd. – Portland 6:00-8:00PM
Fri 1/3/19 SCAFO Office – 4566 NE 87th Ave – Portland 6:00-8:00PM
Sat 1/4/19 Eugene NAACP – 330 High St. – Eugene 10:00-Noon
Sat 1/4/19 Pauline Memorial AME Zion Church – 3593 Sunnyview Rd. – NE Salem 2:00-4:00PM
Tue 1/7/19 Sunrise Center – 18901 E Burnside – Gresham 6:00-8:00PM
Thur 1/9/20 NeighborImpact – 2303 SW 1st St.  – Redmond 1:00-3:00PM & 3:00-5:00PM
Fri 1/10/20 Klamath Family Head Start – 1940 S. 6th St. – Klamath Falls  10:00-Noon
Fri 1/10/20 Living Opportunities – 717 Murphy Rd. – Medford 4:00-6:00PM
Sat 1/11/20 Portland Metro Area – Location TBD 1:00-3:00PM

Click here to download the PDF flyer.