“Our mission is to improve the quality of life of those suffering with sickle cell disorders and to inform and educate the general population. Our goal is to promote awareness of the genetic causes and health effects of sickle cell anemia and related conditions; to promote improved access to care through raising the number of sickle cell educated clinicians; to remove the stigma that sickle cell clients are drug seekers which impede the ability to provide sensitive and quality care.”
–Pastor Marcia L. Taylor, Director,
Sickle Cell Anemia Foundation of Oregon
What is Sickle Cell Disease?
Sickle Cell Disease (SCD) is an inherited blood disorder that affects over 100,000 Americans — and millions worldwide. SCD is often identified with the African Americans, but it also frequents people of South Asian, Middle Eastern, Hispanic, and Mediterranean descent. According to the CDC, approximately 1% of children with SDC will die within the first 3 years of life — often from stroke and without warning. Some two million Americans are carriers of the sickle cell gene.
The Sickle Cell Anemia Foundation of Oregon is a 501(c)(3) non-profit organization dedicated to educating vulnerable populations and to encourage testing for the presence of this painful and life-threatening, but treatable disease.
What does the Sickle Cell Anemia Foundation do?
The Sickle Cell Anemia Foundation of Oregon is a non profit 501(c)(3) corporation that is dedicated to serving the needs of Sickle Cell patients across the Pacific Northwest.
The foundation helps patients with:
- Patient advocacy
- Access to support groups
- Parent education
- Genetic counseling and referrals for free diagnostic testing
- Ongoing education about SCD and about available treatments
- Limited funds for home heating during winter months
- Moral support