A research project is looking for teens 13-17 years old to assist with the development of Pinpoint, a phone and tablet app that helps young Sickle Cell Disease (SCD) patients assess and talk about their pain.
If you have a child between the ages of 13-17 years old who has SCD, you and your child may be eligible to participate in this study sponsored by The National Institutes of Health.
Both parents and children will be asked to participate.
Children will be asked to use the Pinpoint app for up to 16 weeks and complete surveys.
Parents will be asked to complete surveys.
Teen participants will receive a $20 gift card and Parents will receive a $10 gift card for each assessment period.
Classes Start on Tuesday May 4th 2021
On-Line from the Comfort of Your Own Home
No Charge for Sickle Cell Patients and Families
What is Therapeutic Martial Art?
TMA is slow martial arts movement, mindfulness training, and meditation practice all in one. TMA rejuvenates- promoting Spiritual, Mental, and Physical Wellbeing.
Come and learn more about Oxbryta
and have all of your questions answered!
Featuring webinar guest Jamie Smutko, PhD, Director of Medical Science Liaisons for West Global Blood Therapeutics in South San Francisco.
April 22, 2021
Thursday, at 6 pm – 7 pm
$50 stipends to the first 10 to register and attend! Please click the registration link to sign up for group — we’ll send you group reminders, updates, and information.
Join Dr. Holden, diagnosed with Type SS Sickle Cell Disease at less than 6 months of age., as she shares her journey to finding her path to “Living A Life of Purpose”
Special incentive for the first 20 people attend our first three group sessions- March, April, May
Questions?- Contact Chuck Smith at: charles@sicklecelloregon.org or 503-502-2965
This event, in partnership with Prism Health, is focused on serving, LGTBQ+, Black, Immigrants, Refugees, Indigenous and other people of color over 65 years old. This vaccination clinic will be providing the Pfizer COVID 19 vaccine.
TUESDAY, 16 MARCH 2021 East Portland Community Center