9th Annual PDX Sickle Cell Walk for Awareness
Click here to Register for the Sickle Cell Walk for Awareness!
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Are you the Parent of a Child with Sickle Cell Disease?
A research project is looking for teens 13-17 years old to assist with the development of Pinpoint, a phone and tablet app that helps young Sickle Cell Disease (SCD) patients assess and talk about their pain.
If you have a child between the ages of 13-17 years old who has SCD, you and your child may be eligible to participate in this study sponsored by The National Institutes of Health.
Both parents and children will be asked to participate.
Children will be asked to use the Pinpoint app for up to 16 weeks and complete surveys.
Parents will be asked to complete surveys.
Teen participants will receive a $20 gift card and Parents will receive a $10 gift card for each assessment period.
Therapeutic Martial Arts Online: No Charge for Sickle Cell Patients and Families
Portland Soo Bahk Do Therapeutic Martial Arts
Tuesdays 6:00 – 7:00 PM
https://zoom.us/j/7161992869
Classes Start on Tuesday May 4th 2021
On-Line from the Comfort of Your Own Home
No Charge for Sickle Cell Patients and Families
What is Therapeutic Martial Art?
TMA is slow martial arts movement, mindfulness training, and meditation practice all in one. TMA rejuvenates- promoting Spiritual, Mental, and Physical Wellbeing.
Benefits of TMA Training
- Improved Focus and Brain Functioning
- Improved Emotion Management & Self-Regulation
- Reduced Stress Level- Improved Stress Management Skills
- Calm Mind – Emotional Wellbeing
- Increased Balance, Strength & Energy
- Improved Sleep
- Improved Relationships
Learn and Apply Cultural Principles for Health, Wellness and Harmony
Song of the Sip Sam Seh- Martial Arts Philosophy
Pyramids of Power- African Centered Health
Kemetic Way- Unity, Truth, Connection to Nature, Life
Instructor: Master Charles Smith (6th Degree, Soo Bahk Do)
To register contact: charles@portlandsoobahkdo.com
(503) 502-2965
Click to download our Therapeutic Martial Arts Class Flyer- May 2021
Oxbryta for Sickle Cell: Scafo Webinar
Come and learn more about Oxbryta
and have all of your questions answered!
Featuring webinar guest Jamie Smutko, PhD, Director of Medical Science Liaisons for West Global Blood Therapeutics in South San Francisco.
April 22, 2021
Thursday, at 6 pm – 7 pm
$50 stipends to the first 10 to register and attend! Please click the registration link to sign up for group — we’ll send you group reminders, updates, and information.
Join us on Zoom at: https://zoom.us/j/7161992869
SCAFO Sickle Cell Support Group on 3/18
Join SCAFO’s
Monthly Peer Support Group
For People Living with Sickle Cell Disease
Thursday March 18th, 2021
7:00 to 8:00 PM (PST)
Zoom Link- https://zoom.us/j/7161992869
Special Guest – Dr. Patrise Holden
Join Dr. Holden, diagnosed with Type SS Sickle Cell Disease at less than 6 months of age., as she shares her journey to finding her path to “Living A Life of Purpose”
Special incentive for the first 20 people attend our first three group sessions- March, April, May
Questions?- Contact Chuck Smith at: charles@sicklecelloregon.org or 503-502-2965
Sickle Cell Anemia Support Group
Dear Sickle Cell Community:
The Sickle Cell Anemia Foundation of Oregon is planning to start up a monthly support group for Sickle Cell patients. We have doctors of color (two of whom have SSD) attending, as well as discussions about new pharmaceutical treatments aimed at sickle cell.
We are proposing a meeting every 3rd Thursday of the month, from 7PM to 8PM.
We will be offering $50 each to the first 20 sickle cell patients to sign up and attend at least the first 3 sessions.
If you are interested in participating, please fill out the form located here.
Covid-19 Vaccine Update for Sickle Cell Patients
Covid-19 Vaccine Update presented by Dr. Lewis Hsu, Chief Medical Officer, SCDAA.
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Click here open or download the PDF: H-1600 – Dr. Hsu event flyer_LO
COVID19 Vaccinations in Multnomah County
Here’s an update on COVID19 vaccinations from Multnomah County:
Two different lines for vaccinations are opening today (2/8) at 9am for seniors 80+ and anyone eligible in Phase 1A:
- Oregon Convention Center – Phase 1A/Traditional Health Care Workers and seniors 80+
- Red Economy Lot of the PDX airport – Seniors 80+
Please prioritize those who are or are supporting BIPOC communities, and Elders as supplies are limited.
Go to: www.covidvaccine.oregon.gov to sign up for an appointment.