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Dec 8 2021
Sickle Cell Support Group and Holiday Celebration

Join Us on Thursday December 16th- 7:00 – 8:00 PM

Sickle Cell Support Group and Holiday Celebration

For people with sickle cell disease and their family members
Connect with old and new friends
Support others and get the support you need
Special holiday surprise from Dr. Patrice Holden

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Focus Group Recruit-Earn $25

Are you between the ages of 21 and 30 and have received your COVID vaccination?
Register for a focus group for people ages 21-30 who have received their COVID vaccination and who have friends or family who have not been vaccinated.
Gift card for all who participate.
Focus group date/time: Thursday 12/16 – 3:30-5:00 PM
Contact Carrie Robersone if you are interested – 971-378-9989

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May 8 2021
SCAFO Health and Well-Being

Healthy Youth Program Registration

Join this group for young people to help end violence and racism. It starts with self.

  • Meet new friends
  • Develop your creativity
  • Design a cool project to express yourself about health, violence and racism
  • Do your part to promote health, stop violence and end racism- young people can make a difference

How to register – click the registration link.

When
Monthly gatherings in person and on Zoom

Spring retreat- Dates TBD

Summer beach camp in August (dates TBD)

Extra Benefits
Incentives gifts provided for regular participation
Final incentive gift provided for regular attendance- valued at $200

Who Can Participate

  • Any young person age- 10-19
  • Need Wi Fi access for online group meetings
  • Need Computer or phone with Zoom connection capability for online group meeting

Questions: Contact Chuck Smith 503-502-2965 / charles@sicklecelloregon.org

Click on the Registration Link to get started:  Youth Program Registration Form

And check out our Healthy Youth Program highlights reel from 2023 and 2024:

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Apr 27 2021
Are you the Parent of a Child with Sickle Cell Disease?

A research project is looking for teens 13-17 years old to assist with the development of Pinpoint, a phone and tablet app that helps young Sickle Cell Disease (SCD) patients assess and talk about their pain.

If you have a child between the ages of 13-17 years old who has SCD, you and your child may be eligible to participate in this study sponsored by The National Institutes of Health.

Both parents and children will be asked to participate.

Children will be asked to use the Pinpoint app for up to 16 weeks and complete surveys.

Parents will be asked to complete surveys.

Teen participants will receive a $20 gift card and Parents will receive a $10 gift card for each assessment period.

Click here for more information and to download PDF flyer

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