SCAFO Celebrates Black History Month 2024!
PORTLAND — The Sickle Cell Anemia Foundation of Oregon is excited by the news that two types of gene therapy for sickle cell have been approved by the FDA: Casgevy for “gene editing”, and Lyfgenia for “gene addition”.
The SCDAA has called gene therapy “potentially curative“, though, they warn, not everyone may be “eligible for gene therapy.”
Gene therapy involves a complex series of steps, such as:
Patients who undergo such treatments can expect crisis-level episodes to diminish significantly over time as diseased blood cells are naturally replaced by healthy cells.
Candidates for sickle cell gene therapy must be evaluated against the dangerous effects of chemotherapy.
The FDA has approved both Casgevy and Lyfgenia for sickle cell patients ages 12 and up. The treatments are approved for sickle cell phenotypes SS and S-beta-zero.
SCDAA has more information here.
Sickle Cell Warriors: It’s Turkey Time!
Register for your Free Turkey Here: https://tinyurl.com/SCAFOTURKEY23
In observance of Juneteenth, 2023 there will be two virtual sessions for you to attend!
Please click here to register: https://tinyurl.com/J23Reg
Living with Sickle CellClick here to download the flyer.
Click here to download this PDF file.
Join us on Zoom – https://zoom.us/j/7161992869
Please click the registration link to sign up for group.
Contact us if you have questions or if we can be of help in other ways — 503-249-1366
Your facilitators are Chuck Smith (charles@sicklecelloregon.org) and Pastor Marcia Taylor (marcia@sicklecelloregon.org).