Juneteenth Celebration: 19 June 2021
June 19 is World Sickle Cell Day!
Shine the Light!
Free Backpacks to All Sickle Cell Clients!

Pick up your free backpack on Saturday, June 19th, 2021
Just drive by with your ID!
Where:
4566 NE87th Ave
Portland, OR 97220
When:
2-3PM
Let’s Talk About Endari
— CLICK HERE TO REGISTER FOR THIS FREE EVENT —
CLICK FOR ZOOM LINK
SCAFO Health and Well-Being
Healthy Youth Program Registration
Join this group for young people to help end violence and racism. It starts with self.
- Meet new friends
- Develop your creativity
- Design a cool project to express yourself about health, violence and racism
- Do your part to promote health, stop violence and end racism- young people can make a difference
How to register – click the registration link.
When
Monthly gatherings in person and on Zoom
Spring retreat- Dates TBD
Summer beach camp in August (dates TBD)
Extra Benefits
Incentives gifts provided for regular participation
Final incentive gift provided for regular attendance- valued at $200
Who Can Participate
- Any young person age- 10-19
- Need Wi Fi access for online group meetings
- Need Computer or phone with Zoom connection capability for online group meeting
Questions: Contact Chuck Smith 503-502-2965 / charles@sicklecelloregon.org
Click on the Registration Link to get started: Youth Program Registration Form
And check out our Healthy Youth Program highlights reel from 2023 and 2024:
Are you the Parent of a Child with Sickle Cell Disease?
A research project is looking for teens 13-17 years old to assist with the development of Pinpoint, a phone and tablet app that helps young Sickle Cell Disease (SCD) patients assess and talk about their pain.
If you have a child between the ages of 13-17 years old who has SCD, you and your child may be eligible to participate in this study sponsored by The National Institutes of Health.
Both parents and children will be asked to participate.
Children will be asked to use the Pinpoint app for up to 16 weeks and complete surveys.
Parents will be asked to complete surveys.
Teen participants will receive a $20 gift card and Parents will receive a $10 gift card for each assessment period.
Therapeutic Martial Arts Online: No Charge for Sickle Cell Patients and Families
Portland Soo Bahk Do Therapeutic Martial Arts
Tuesdays 6:00 – 7:00 PM
https://zoom.us/j/7161992869
Classes Start on Tuesday May 4th 2021
On-Line from the Comfort of Your Own Home
No Charge for Sickle Cell Patients and Families
What is Therapeutic Martial Art?
TMA is slow martial arts movement, mindfulness training, and meditation practice all in one. TMA rejuvenates- promoting Spiritual, Mental, and Physical Wellbeing.
Benefits of TMA Training
- Improved Focus and Brain Functioning
- Improved Emotion Management & Self-Regulation
- Reduced Stress Level- Improved Stress Management Skills
- Calm Mind – Emotional Wellbeing
- Increased Balance, Strength & Energy
- Improved Sleep
- Improved Relationships
Learn and Apply Cultural Principles for Health, Wellness and Harmony
Song of the Sip Sam Seh- Martial Arts Philosophy
Pyramids of Power- African Centered Health
Kemetic Way- Unity, Truth, Connection to Nature, Life
Instructor: Master Charles Smith (6th Degree, Soo Bahk Do)
To register contact: charles@portlandsoobahkdo.com
(503) 502-2965
Click to download our Therapeutic Martial Arts Class Flyer- May 2021
Oxbryta for Sickle Cell: Scafo Webinar
Come and learn more about Oxbryta
and have all of your questions answered!
Featuring webinar guest Jamie Smutko, PhD, Director of Medical Science Liaisons for West Global Blood Therapeutics in South San Francisco.
April 22, 2021
Thursday, at 6 pm – 7 pm
$50 stipends to the first 10 to register and attend! Please click the registration link to sign up for group — we’ll send you group reminders, updates, and information.
Join us on Zoom at: https://zoom.us/j/7161992869

