Let’s Talk About Endari
— CLICK HERE TO REGISTER FOR THIS FREE EVENT —
Youth Against Violence and Racism: Program Registration
Youth Against Violence and Racism
Join this group for young people to help end violence and racism. It starts with self.
- Meet new friends
- Develop your creativity
- Design a cool project to express yourself about violence and racism
- Do your part to stop violence and end racism- young people can make a difference
How to register – click the registration link.
When
Start date: Saturday May 22, 2021 1:00-2:00 PM
Meet weekly on Saturdays from May 22 to August 28- on Zoom (for now)
Final program celebration and presentation on August 28
Extra Benefits
Incentives gifts provided for weekly participation
Final incentive gift provided for regular attendance- valued at $200
Who Can Participate
- Any young person age- 10-19
- Need Wi Fi access for group meetings
- Need Computer or phone with Zoom connection capability for group meeting
Questions: Contact Chuck Smith 503-502-2965 / charles@sicklecelloregon.org
Click on the Registration Link to get started: Youth Program Registration Form
Are you the Parent of a Child with Sickle Cell Disease?
A research project is looking for teens 13-17 years old to assist with the development of Pinpoint, a phone and tablet app that helps young Sickle Cell Disease (SCD) patients assess and talk about their pain.
If you have a child between the ages of 13-17 years old who has SCD, you and your child may be eligible to participate in this study sponsored by The National Institutes of Health.
Both parents and children will be asked to participate.
Children will be asked to use the Pinpoint app for up to 16 weeks and complete surveys.
Parents will be asked to complete surveys.
Teen participants will receive a $20 gift card and Parents will receive a $10 gift card for each assessment period.
Therapeutic Martial Arts Online: No Charge for Sickle Cell Patients and Families
Portland Soo Bahk Do Therapeutic Martial Arts
Tuesdays 6:00 – 7:00 PM
https://zoom.us/j/7161992869
Classes Start on Tuesday May 4th 2021
On-Line from the Comfort of Your Own Home
No Charge for Sickle Cell Patients and Families
What is Therapeutic Martial Art?
TMA is slow martial arts movement, mindfulness training, and meditation practice all in one. TMA rejuvenates- promoting Spiritual, Mental, and Physical Wellbeing.
Benefits of TMA Training
- Improved Focus and Brain Functioning
- Improved Emotion Management & Self-Regulation
- Reduced Stress Level- Improved Stress Management Skills
- Calm Mind – Emotional Wellbeing
- Increased Balance, Strength & Energy
- Improved Sleep
- Improved Relationships
Learn and Apply Cultural Principles for Health, Wellness and Harmony
Song of the Sip Sam Seh- Martial Arts Philosophy
Pyramids of Power- African Centered Health
Kemetic Way- Unity, Truth, Connection to Nature, Life
Instructor: Master Charles Smith (6th Degree, Soo Bahk Do)
To register contact: charles@portlandsoobahkdo.com
(503) 502-2965
Click to download our Therapeutic Martial Arts Class Flyer- May 2021
Oxbryta for Sickle Cell: Scafo Webinar
Come and learn more about Oxbryta
and have all of your questions answered!
Featuring webinar guest Jamie Smutko, PhD, Director of Medical Science Liaisons for West Global Blood Therapeutics in South San Francisco.
April 22, 2021
Thursday, at 6 pm – 7 pm
$50 stipends to the first 10 to register and attend! Please click the registration link to sign up for group — we’ll send you group reminders, updates, and information.
Join us on Zoom at: https://zoom.us/j/7161992869
SCAFO Sickle Cell Support Group on 3/18
Join SCAFO’s
Monthly Peer Support Group
For People Living with Sickle Cell Disease
Thursday March 18th, 2021
7:00 to 8:00 PM (PST)
Zoom Link- https://zoom.us/j/7161992869
Special Guest – Dr. Patrise Holden
Join Dr. Holden, diagnosed with Type SS Sickle Cell Disease at less than 6 months of age., as she shares her journey to finding her path to “Living A Life of Purpose”
Special incentive for the first 20 people attend our first three group sessions- March, April, May
Questions?- Contact Chuck Smith at: charles@sicklecelloregon.org or 503-502-2965
LGBTQ+ & BIPOC Older Adult (65+) COVID Vaccine Event
This event, in partnership with Prism Health, is focused on serving, LGTBQ+, Black, Immigrants, Refugees, Indigenous and other people of color over 65 years old. This vaccination clinic will be providing the Pfizer COVID 19 vaccine.
TUESDAY, 16 MARCH 2021
East Portland Community Center
By Appointment Only
https://www.signupgenius.com/go/3-16pfizer
Sickle Cell Anemia Support Group
Dear Sickle Cell Community:
The Sickle Cell Anemia Foundation of Oregon is planning to start up a monthly support group for Sickle Cell patients. We have doctors of color (two of whom have SSD) attending, as well as discussions about new pharmaceutical treatments aimed at sickle cell.
We are proposing a meeting every 3rd Thursday of the month, from 7PM to 8PM.
We will be offering $50 each to the first 20 sickle cell patients to sign up and attend at least the first 3 sessions.
If you are interested in participating, please fill out the form located here.