September is Sickle Cell Awareness Month! Take a SELFIE for Sickle Cell Awareness!
From September 7th to 13th
The Morrison Bridge in Portland will LIGHT UP for
SICKLE CELL AWARENESS!
We invite you to pull over and take a SELFIE with the Morrison Bridge Lights in the background and send it to us!
Send to info@sicklecelloregon.org or post on https://www.facebook.com/Sicklecelloregon/
2025 Sickle Cell Live! Awareness Dinner (Reserve Your Table!)
Click here to reserve your table for the 2025 Annual Sickle Cell Live! Awareness Dinner, Sponsored by The Sickle Cell Anemia Foundation of Oregon&PNW, for Thursday, September 25th, starting at 6PM.
SCAFO Sickle Cell Walkathon 2025
There is still time to make a reservation for Portland’s 13th Annual Sickle Cell Walk for Awareness & Community Marketplace, Sponsored by The Sickle Cell Anemia Foundation of Oregon&PNW, coming up soon on Saturday, September 13th starting at 8AM.
Register for the Sickle Cell Summer Camp 2025!
SICKLE CELL 2025 WALKATHON: SATURDAY, SEPTEMBER 13, 2025
FREE! MUSIC! FUN! FOOD!
ANYONE DONATING $25 GETS A FREE T-SHIRT
CLICK TO REGISTER!
Download our PDF flyer here.
Register Now for the Youth Spring Break Retreat 2025
Dear Sickle Cell friend:
SCAFO is sponsoring a Spring Break Retreat Day for youth aged 10 to 21, to be held on March 29, 2025, at the Firstenburg Community Center, located at 700 NE 136th Ave, Vancouver, WA, 98684.
Register here by March 22:
https://tinyurl.com/SCAFOSB25
Download the PDF flyer here.
Webinar: Sickle Cell Pain Management
Sickle Cell Pain Management
This Friday, February 7 from 10AM-1PM Pacific Time, the National Academies consensus study committee will host an online information-gathering webinar on Pain Management and living with sickle cell disease (SCD).
The webinar will focus on pain management interventions and strategies, with special attention to questions such as:
- When and how often are parenteral opioid pain medications used to manage SCD pain crises?
- What are indicators or contraindicators for their use?
- How have best practices regarding opioid pain medication changed over the past 10 years?
- What circumstances or factors might lead providers not to prescribe opioid pain medication, even when advised by current best practices?
- What other pain medications might be administered in the context of a severe pain crisis?
- What can alternative medications tell us about a patient’s symptom severity?
- What non-pharmacological interventions, including traditional and alternative therapies and home remedies, are available to manage pain associated with SCD?
- What treatments or interventions used for acute pain crises are equivalent to parenteral opioid medication in terms of medical severity of the underlying acute crisis?
Learn more on the event page.