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Are you the Parent of a Child with Sickle Cell Disease?

A research project is looking for teens 13-17 years old to assist with the development of Pinpoint, a phone and tablet app that helps young Sickle Cell Disease (SCD) patients assess and talk about their pain.

If you have a child between the ages of 13-17 years old who has SCD, you and your child may be eligible to participate in this study sponsored by The National Institutes of Health.

Both parents and children will be asked to participate.

Children will be asked to use the Pinpoint app for up to 16 weeks and complete surveys.

Parents will be asked to complete surveys.

Teen participants will receive a $20 gift card and Parents will receive a $10 gift card for each assessment period.

Click here for more information and to download PDF flyer

Therapeutic Martial Arts Online: No Charge for Sickle Cell Patients and Families

Portland Soo Bahk Do Therapeutic Martial Arts

 

Tuesdays 6:00 – 7:00 PM
https://zoom.us/j/7161992869

 

Classes Start on Tuesday May 4th 2021
On-Line from the Comfort of Your Own Home

No Charge for Sickle Cell Patients and Families

 

What is Therapeutic Martial Art?

TMA is slow martial arts movement, mindfulness training, and meditation practice all in one. TMA rejuvenates- promoting Spiritual, Mental, and Physical Wellbeing.

Benefits of TMA Training

  • Improved Focus and Brain Functioning
  • Improved Emotion Management & Self-Regulation
  • Reduced Stress Level- Improved Stress Management Skills
  • Calm Mind – Emotional Wellbeing
  • Increased Balance, Strength & Energy
  • Improved Sleep
  • Improved Relationships
 

Learn and Apply Cultural Principles for Health, Wellness and Harmony

Song of the Sip Sam Seh- Martial Arts Philosophy
Pyramids of Power- African Centered Health
Kemetic Way- Unity, Truth, Connection to Nature, Life

 

Instructor: Master Charles Smith (6th Degree, Soo Bahk Do)
To register contact: charles@portlandsoobahkdo.com
(503) 502-2965

 

Click to download our Therapeutic Martial Arts Class Flyer- May 2021

Oxbryta for Sickle Cell: Scafo Webinar

Come and learn more about Oxbryta
and have all of your questions answered!

Featuring webinar guest Jamie Smutko, PhD, Director of Medical Science Liaisons for West Global Blood Therapeutics in South San Francisco.

April 22, 2021
Thursday, at 6 pm – 7 pm

$50 stipends to the first 10 to register and attend! Please click the registration link to sign up for group — we’ll send you group reminders, updates, and information.

Join us on Zoom at: https://zoom.us/j/7161992869