To the Parents of Children with Special Health Needs!

Parents of Children with Special Health Needs: Focus Groups in Oregon

The Sickle Cell Anemia Foundation of Oregon (SCAFO) and the Oregon Center for Children and Youth with Special Health Needs (OCCYSHN) are talking with families who have Black children with special health care needs. We want to learn about their experiences working with health care providers to care for their child. We will use this information to advocate for services that meet the needs of Black children and their families.

Children with special health care needs can have any kind of health condition that affects their body, development, emotions, or mind. Their condition lasts for at least a year, and they need care or other services more than other children typically would. We specifically want to talk with parents or guardians of children with special health care needs who are younger than 26 years old.

SCAFO will hold confidential group discussions with parents who agree to participate. The
discussions will last two hours, and refreshments will be provided. Families will be provided with $50, and childcare and transportation if needed.

If you are interested in learning more about this project, please call or email:

Pastor Marcia Taylor (503) 249-1366, or
Charles Smith (503) 502-2965;

Wed 12/18/19 National Association of Minority Contractors – 2808 NE MLK Blvd. – Portland 6:00-8:00PM
Fri 1/3/19 SCAFO Office – 4566 NE 87th Ave – Portland 6:00-8:00PM
Sat 1/4/19 Eugene NAACP – 330 High St. – Eugene 10:00-Noon
Sat 1/4/19 Pauline Memorial AME Zion Church – 3593 Sunnyview Rd. – NE Salem 2:00-4:00PM
Tue 1/7/19 Sunrise Center – 18901 E Burnside – Gresham 6:00-8:00PM
Thur 1/9/20 NeighborImpact – 2303 SW 1st St.  – Redmond 1:00-3:00PM & 3:00-5:00PM
Fri 1/10/20 Klamath Family Head Start – 1940 S. 6th St. – Klamath Falls  10:00-Noon
Fri 1/10/20 Living Opportunities – 717 Murphy Rd. – Medford 4:00-6:00PM
Sat 1/11/20 Portland Metro Area – Location TBD 1:00-3:00PM

Click here to download the PDF flyer.